Tanner Keep peanut and egg, despite 19 eos in mid-esophagus (0 in other areas). AND add in soy!!! Scope next month when we are in Denver.
Kaleigh Continue with egg for another week or so AND add in soy at that point (assuming no reactions to egg)!!! To make it easier on everyone, both Tanner and Kaleigh will start soy at the same time. Scope next month when we are in Denver.
Hunter Continue with study. His 12 weeks will end right before we go to Denver so he'll be having his second endoscopy as part of the study the week before we leave. We will get the slides to Denver where they will determine whether we go backwards, forwards, do some food challenges, look at continuing with budesonide, etc. He will obviously NOT be scoped there since he would've just had one. The dr. did NOT sound like adding foods back in with 15 eos in a couple places was a good idea, so I'm really really hoping that number goes down...whether it's from the environment or the budesonide. They may plan some food challenges for him if the numbers go down. I REALLY REALLY want to add in more foods for him and am getting impatient and occasionally kind of sad about his diet. *He* however, is ok with it for the most part.
He said we will plan on doing all allergy testing and appointments on Day One. Depending how the numbers come back for both allergy testing and scopes, we will talk about adding in the next food (wheat probably) or taking a break for a while.
The following day, Tanner and Kaleigh will be scoped. We are trying to keep our trip short this time around, so we should be free to go home after that. We'll probably stay until Saturday, then head home.
So...official appointment dates are 6/25 and 6/26, with travel probably the day before and the day after! I am a little uneasy about how he wants to proceed with Tanner's diet, but completely trust him at the same time, so I'm going to go with it and hope for the best. I feel confident that if it doesn't go well, that he'll have a good back-up plan. And honestly, both Tanner and Kaleigh have such good diets right now that it wouldn't kill us to have to back track a little...a little disappointing yes, but not the end of the world.
I'm taking the kids by myself this year.
They had to tweak the scheduling a little so I don't have 1 kid getting an edoscopy at TCH (The Children's Hospital) while another is at NJ. Both hospitals are part of the program and not too far from each other...fairly easy drive.
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